Only scant attention has been given to the issue of children’s bioethics. Even when such a discourse took place, it hardly touched upon children as social agents. In this novel work, Maya Sabatello looks at the “body politics” of religious and cultural medical practices - from “harmful traditional practices” to genetic engineering. Building on literature from medical anthropology, cultural studies, disability studies, social sciences, and law, she explores the international discourse on children’s bioethics from a previously uncharted child-centered approach. In light of the existing multiculturalism, she contends that in the discourse on children's bioethics, not only must the medical, social and, anthropological nexus of the child be taken into account, but that incorporating identity claims into the legal discourse is also essential for the child’s voice to be heard.
Maya Sabatello, L.L.B., Ph.D. (2006) in Political Science, University of Southern California, and currently teaches at the Center for Global Affairs, New York University. She has published on the topic of disabilities and bioethics, and participated in the UN drafting of the International Convention on the Rights of Persons with Disabilities.
Table of contents
Acknowledgment; List of Abbreviations; Table of Contents;
Chapter 1: Introduction; OUTLINE OF THE BOOK;
Chapter 2: Using International Human Rights Framework to Study Bioethics; INTERNATIONAL HUMAN RIGTHS AND BIOETHICS: AN INEXTRICABLE CONNECTION; MEDICAL CULTURES; CHILDREN, BIOETHICS AND MEDICAL CULTURES; CHILDREN’S BIOETHICS AND THE QUESTION OF AGENCY; BIOETHICS AND CULTURE: TERMS AND WORKING DEFINITIONS;
Chapter 3: Children’s Bioethics in the Convention on the Rights of the Child: Historical Overview of the Drafting Process; DRAFTING THE CHILDREN’S CONVENTION; CATEGORIES OF BIOMEDICAL PRACTICES; WHO WON, WHO LOST?; CONCLUSION;
Chapter 4: Traditional Bodily Practices: Case Studies; CASE SELECTION; TRADITIONAL BODILY PRACTICES: BACKGROUND AND CONTEXT; CONCLUSION;
Chapter 5: Children’s Bioethics and the Framework of Analysis; THEORETICAL FRAMEWORK OF HUMAN RIGHTS; BODILY PRACTICES AND CULTURAL CONFLICTS; CONCLUSION;
Chapter 6: Biomedical Practices and the Child: Rights in Question; ABUSE AND NEGLECT; TORTURE, CRUEL AND INHUMAN AND DEGRADING TREATMENT; FREEDOM FROM VIOLENCE; FREEDOM OF THOUGHT, CONSCIENCE AND RELIGION; INFORMED CONSENT; CONCLUSION;
Chapter 7: Rights Discourse, Children and Bioethics; CULTURE, CULTURAL RIGHTS AND CULTURAL IDENTITY; CHILDREN AS BEARERS OF (BIOMEDICAL) CULTURAL RIGHTS; THE CHILD'S CULTURAL IDENTITY; CHILDREN’S BIOETHICS IN PRACTICE; CONCLUSION;
Chapter 8: Broadening the Lens; GENETIC MANIPULATIONS; GENETIC SELECTION OF CHILDREN’S CHARACTERISTICS: A PART OF PARENTAL REPRODUCTIVE FREEDOM?; SCIENTIFIC PROGRESS AND CHILDREN; THE CHILD’S ‘RIGHT TO A SOUND MIND AND BODY’?; CONCLUSION;
Chapter 9: Conclusion; CONSIDERATIONS UNDER THE PHYSICAL PATH; CONSIDERATIONS UNDER THE IDENTITY PATH; RESOLUTION OF BIOMEDICAL CONFLICTS; CHILDREN’S BIOETHICS: A REEVALUATION; Bibliography; COURT CASES; INTERNATIONAL DOCUMENTS; SOURCES
All those interested in children’s rights, bioethics, cultural studies, multiculturalism, disability, and international human rights law, as well as medical anthropologists, political scientists, philosophers, legal scholars and public policy makers.